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Showing posts from July, 2011

Official diagnosis

Wait for it. Wait for it. Wait. Keep waiting.  Yup, you're in the same boat as us. Officially nobody has a clue what is going on with Rambo genetically. Therefore, we have titled it 'Rambocitis'. You'll see it in the books one day.  We met with the geneticist yesterday and left with as much information as we came with. Rambo is genetically questionable. I'm not even sure he's a real human. As cool as you might think it is to have something no one else has, let me tell you - it is not that cool. We can definitely say that Rambo is unique to the core. The doctor said that it is not unusual to not have a name for certain genetic problems. However, the fact that so many areas and systems of his body are affected and we still don't know what it is is very unusual. Even his eyes have unique optic nerves. In fact, there is a name for something similar to what he has, but of course he can't have that. No, he has to be just different enough to make it difficu

Three out of four ain't bad.

That's what I keep telling Ben, anyway. "Don't feel bad, Ben. You did your part in the majority of our children. Your good genes just decided to take a break with this one." That way, while getting him to accept full responsibility, I'm also completely uplifting at the same time. :) Of course there is really no need for anyone to accept responsibility. What kind of a mother do you think I am?? Rambo is perfect and we believe he is exactly as God has made him ready to fulfill whatever plans He has for him.  The past two weeks have been filled with a whole lot of nothing. Well, okay, I take that back. Only if you consider constant fussing (and by fussing I mean absolute flipping out, crying, someone has taken over this child, leg kicking, not breathing because I'm 'screaming', sweating, body stiffening, overall unhappiness) nothing. And, of course, I do. I know that every child goes through stages like this. But, oh my soul, I'm losing my mind. T