Rambo's Rampages...

Are those not the weirdest creatures? Seriously. They can be in a dried egg for like, ever and then come alive in water. Plus they are incredibly tiny - who even found these things??? And why have they been to outerspace?  These are all questions that plague my mind. But then I realize that I don't care at all. I just know they are in my kitchen and I have one excited kid. If memory serves me correctly (Iron Chef anyone???) I never had sea monkeys when I was a kid. I don't feel like I missed out on anything I just don't want to kill these miniscule fish things that you can't even see because of lack of experience. But if they can go to space and be fine then I think we have real problems if I kill them following the instructions. That'd be a real "Are you serious, Clark?" moment if there ever was one. Now on to things that actually matter.  I'm not sure if my disappointment was clear in the last post about nursing or not. But we went from 98 hour...

We got a call this morning that our appeal for more nursing hours was approved!!!! 14 hours a day!!!!! Our lives are seriously about to change. I am still slightly in shock and am finding it hard to imagine what I'm going to do with all that time. A big big thank you to all those who put in work to make that happen. To the few we told about this process, thank you for praying and and supporting us. I can't believe this is happening!! Ahhhh!! I'm going to go pinch myself again just to be sure this isn't some cruel dream.  Corrected: I just got a phone call 2 hours after the original one. It was most definitely a dream. It was miswritten somewhere apparently. We are only getting an extra 2 hours per day - 14 additional hours a week.  Completely bummed. I would have erased this post but it was already read by some. Boo for us.  

  Once upon a time a little boy got his first approved haircut.     And he loved every minute of it. Can't you tell? He actually did a very good job. But it was definitely tricky.    And he was not happy with her.   Or me. The end. The doctor will be happy to know that the mullet is gone. (I only had two pictures of the back of his head post cut but they were both blurry. I'll get some better ones in the next few days.) It was so sad to take off his bottom curls :( But on the bright side, his head does look smaller so that's a plus. Also on the bright side, he is FINALLY starting to feel better so his mood had much improved today. Mommy didn't have to run away after all.  

My eyes feel like mush. As does my brain. I guess that's what reading 700 pages worth of medical records will do to you. Okay... TECHNICALLY I've only read a little over 300 because the first 400 were lab results. Unfortunately, they mean nothing to me because I have no idea how to decipher them. It only took me about 22 pages to realize that these were going to go on for a while. I've read all of his surgical procedures and notes, almost all of the consults from when he was newborn, and am now working my way through his xray findings. All 300 million of them. I've come up with a headache and a long list of words to look up. And I'm not even half way through yet.  I must admit to being slightly addicted to these since yesterday. I find them fascinating, though. There is a lot of stuff that we didn't know and that the doctors didn't tell us. Maybe it wasn't a big deal but I like knowing all the nitty gritty details. For instance, during his first surg...

One.) Rambo is sick again. Nothing new lately. He has some kind of acute pnemonia so he is back on antibiotics with the hope of keeping him home. It's been a pretty rough week but his fever has broken (for the second time... hopefully for good). His heart rate and breathing have slowed thankfully, but he is just starting to have labored breathing. He's doing a lot of sleeping and we hope that means lots of healing as well.  The thought of going back to the hospital is looming over me. I'm trying to accept it with open arms, but I can assure you that I am just as tired of thinking about it as you are of hearing about it. Two.) Bumper stickers are in!!!!   Check out Rambo's Heart for more info on getting one or some! Do it! Three.) Thanks to my wonderful friend who also happens to be my neighbor, I am getting a pedicure today! Woot! Not that any of you care, but my little toes are going to thank me. I can't wait! Four.) Just as pointless as number three, b...

It's unfortunate, but true.  This boy needs a haircut. It pains me to say it. And it's not just because his doctor mentions it EVERY time we go there, but he really does need one. He had his first haircut before he was 2 weeks old. Then they kept coming over the next several months. His hair has gone from brown to RED to strawberry blonde and curly. And it is still just starting to grow in in certain places the razor visited.  I am loathe to do it. If he were a girl I could pull it up in these super cute pony tails, or put a little clip in the front. But, alas, the curly hair was saved for my son. Figures.  So, without (too much) further ado, and before I chicken out, he will have his first official hair cut. How we will implement this is a whole other issue considering the fact that he can't sit up stable on his own yet. Which means, mistakes could occur easily. I'm hoping to take off just enough to keep his head from looking larger than it already is, but not ...

I really should be doing something productive this Saturday morning, but I just can't bring myself to do it. I'm sure I'll pay for it later when it's 11pm and I'm tired and wanting sleep but my house is a mess.... oh well. Instead I am giving you some fun pictures from this week. Enjoy! New pals. Goose is thinking "I own you." LOVE that look. "Ugh, Ruth, I just want your brownie." Yes- that's the kitchen. He's made it. "Okay... I love you too not just your brownie." I want to go to there. "It's my ball and you can't have it." We had an early day at Hopkins yesterday visiting the cardiologist. 5:30 am is not my favorite wake up time, but we survived with only a few coffee malfunctions and forgetting the suction machine which we had to go back for. (Thankfully we had only gotten a couple minutes away from the house when we realized.) So the results of his echo were... drum rol...