It just keeps getting better and better
And by 'better' I mean worse.
What else could we expect from him?
His xray today was worse than two days ago. This is apparently his new trend. It appears the whole upper lobe of his right lung has now 'collapsed'. This, in turn, is making him work harder to breathe.
We were successful in getting another IV in -it's tenuous and position sensitive but it's there. The hope is that he will respond better to IV antibiotics than via shots in the leg. Also, if things get more serious, it's already there in case they need it.
They are changing up his steroid.
They are alternating between two different nebs every 2 hours with chest PT.
In January, I was just told, he tested slightly low for immunoglobulin..la..la..la (I have no idea what the word was) but it has to do with his immunities being low. To this I say "Duh. That might account for why he has gotten sick so many times." But what do I know? So they are going to test again and possibly give him a shot to help with that.
There is still no sign of infection: viral or bacterial. But he is pretty well covered antibiotically that they feel it might be supressing the results.
Usually his oxygen is at 28%. It has not been able to be below 40% when he is awake and anywhere from 60-70% when he is asleep. Unfortunately that is not a requirement we can meet at home. Not that we can go there right now anyway.
What does all this mean?
If he is not looking better by the end of today they have two options. The first is to put him on some CPAP pressure. This basically gives extra pressure in hopes of trying to open up that lung. The second is a bronchoscopy. Which means they would go down into the lung and try to break things up. I would obviously like to avoid the latter, and even the doctor said they were loathe to mess with him in that way.
So that's where we are. Anyone who wants to come rock a fussy baby feel free seeing as how I don't have 3 other children herewilling able to help me out with that. :)
And on the up and up, I did find deoderant at the gift shop. Yay me!
What else could we expect from him?
His xray today was worse than two days ago. This is apparently his new trend. It appears the whole upper lobe of his right lung has now 'collapsed'. This, in turn, is making him work harder to breathe.
We were successful in getting another IV in -it's tenuous and position sensitive but it's there. The hope is that he will respond better to IV antibiotics than via shots in the leg. Also, if things get more serious, it's already there in case they need it.
They are changing up his steroid.
They are alternating between two different nebs every 2 hours with chest PT.
In January, I was just told, he tested slightly low for immunoglobulin..la..la..la (I have no idea what the word was) but it has to do with his immunities being low. To this I say "Duh. That might account for why he has gotten sick so many times." But what do I know? So they are going to test again and possibly give him a shot to help with that.
There is still no sign of infection: viral or bacterial. But he is pretty well covered antibiotically that they feel it might be supressing the results.
Usually his oxygen is at 28%. It has not been able to be below 40% when he is awake and anywhere from 60-70% when he is asleep. Unfortunately that is not a requirement we can meet at home. Not that we can go there right now anyway.
What does all this mean?
If he is not looking better by the end of today they have two options. The first is to put him on some CPAP pressure. This basically gives extra pressure in hopes of trying to open up that lung. The second is a bronchoscopy. Which means they would go down into the lung and try to break things up. I would obviously like to avoid the latter, and even the doctor said they were loathe to mess with him in that way.
So that's where we are. Anyone who wants to come rock a fussy baby feel free seeing as how I don't have 3 other children here
And on the up and up, I did find deoderant at the gift shop. Yay me!
yay for deodorant!
ReplyDeleteBelieving God to bring quick and complete healing to that little man!